PHP is seeking new volunteer leadership for this group. If you are interested and would like more information, please contact PHP Support and Information Group Coordinator, Denny deHarne, at 408-727-5775 x121 or denny@php.com

In the meantime, we have a group that is meeting and is inclusive of those that have children with seizures. We welcome you to join us at one of these meetings. http://www.php.com/support/parent-information-networking-support-meetings

PHP staff are always available to respond to the needs of your family by calling 408-727-5775.

A resource packet to acquaint families with epilepsy and seizure disorders is available by calling our office at (408) 727-5775. If you would like to speak to another parent that has a child with similar issues, don't hesitate to call us to request a mentor parent.

"The Epilepsy and Seizure Disorder Guide: A Resource Guide For Parents" is now available! An electronic version (PDF format) of the Guide can be accessed:

Children are one of life’s greatest gifts. As parents, we want to do all we can to nurture and take care of our children. As a parent of a child with epilepsy, also referred to as seizure disorders, you face the additional challenge of learning as much as you can about your child’s special needs. This Guide was written with you in mind. It was written to give you some very basic information, including an introduction to epilepsy and seizure disorders. It is not intended to provide medical advice. Any questions related to the medical treatment of your child should always be addressed to your child ’s pediatrician/family physician or neurologist.

While this Guide may not provide all of the information you are looking for, it should help you begin your search. Throughout ( this Guide) , we include information about additional resources that we hope will be useful as you begin this journey – a journey that is likely to evolve as you become more knowledgeable about your child’ s condition. Clearly not every parent needs or seeks the same information, so take from this information what applies and is of value to you and your child.

Our PHP Library has a wealth of videos and books on the topic of seizure disorders and our librarian is happy to assist you in locating them. There are many other resources that are available to assist you.

Epilepsy Foundation of America

The Epilepsy Network in Santa Cruz

Learn about the Vagal Nerve Stimulator

Information about infantile spasms and seizure surgery

The International League Against Epilepsy (ILAE)

Ketogenic Diet Information

The Epilepsy Foundation of Northern California has created a Toolkit of materials in PDF format for families and providers to use. The Toolkit includes the following documents:

• Epilepsy in Children: Learning and School Performance
• Epilepsy: Legal RIghts, Legal Issues
• What Everyone SHould Know About Epilepsy
• Me and My World Storybook
• Because You Are My Friend (also in Spanish)
• Seizure Recognition and First Aid
• Kids and Seizures: Know the Hidden Signs (also in Spanish)
• A Child's Guide to Seizure Disorders
• Epilepsy: Talking to Your Doctor
• Issues and Answers: Exploring your Possibilities, A Guide for Teens and Young Adults with Epilepsy
• Children and Seizure, Information for Babysitters
• Seizures, Epilepsy and Your Child (also in Spanish)
• Finding Out About Seizures, A Guide to Medical Tests (also in Spanish)
• Finding Out About Epilepsy, A Guide to Treatment (also in Spanish)
• Answering your Questions about Epilepsy (also in Spanish)

To request these documents be emailed to you (maximum of 5), please visit http://www.epilepsynorcal.org/ and submit a request.